Showing posts with label illness. Show all posts
Showing posts with label illness. Show all posts

Sunday, 22 March 2015

Are You Ready For This?

In the opening line of Hilary Duff's song 'Fly' she sings "In a moment, everything can change".

Have you ever had one of those moments? Everything in your life seems to be on schedule with its ebb and flow, then suddenly you feel like you've been hit with something hard enough to knock the wind out of you and it takes all of your strength to get your bearings back into order again.

A few weeks ago mum told me she wasn't feeling well and hadn't been for a little while. We were concerned, naturally, but since we had no idea what is was, there didn't seem any reason to overreact until we had some idea of what was going on for sure.

Each week that followed involved another doctor's visit, another test, more uncertainty, stress and worry until finally we had something to go on.

Cancer. The specialist she'd gone to see and a mammogram had revealed that she had a lump in her breast, there were also lesions in her liver and her bones. In short, things weren't good.

How do you prepare or even cope with something like that?! Knowing there's nothing you can do except support the person as needed and spend as much time with them as you're able to because you never know what's going to come of it all.

With each test and new bit of information I've been checking in with both my parents and they with me. Oddly enough mum seems to be in the highest of spirits out of anyone. We're still trying to process it, but she's loving the attention and waves of support that are coming from telling people her problems. The worst part is, the rest of us just have to suck it up. It's her thing to deal with however she chooses and although it affects the rest of us, our needs come second.

When I was diagnosed with Idiopathic Scoliosis at 12 and had my surgeries at 13, I chose to block it out and refused to deal with it except for the times when I had to, namely at each doctors visit. Outside of the hospital, it didn't exist because I didn't acknowledge it. Mum on the other had made it everyone's business to know exactly what was going on at every opportunity she had to do so and I hated it more than anything. I fought with her constantly about it. It was my problem to deal or not deal with and she had no right to try and deal with it for me when it was the last thing I wanted.

I've noticed that my coping mechanisms haven't changed much, but I can understand more than I ever could before what mum was going through. Although I've tried not to tell many people about mum's illness because I don't want to think about it, I've found myself mentioning it more than I would have a decade or so ago. It's another way of coping with it.

A close friend of mine who's been through pretty much the same thing told me that as much as it sucks, I need to tell people that I'm around so they know how to approach me. If I react differently than I normally would to anything and they have no idea why, it changes everything. She has a point.

I posted an update on Facebook last week once we had the biopsy results back to announce of the findings and let people know. I hesitated at first because as much as I wanted people to know, I didn't want to say it because that meant it was real then, that meant I actually had to deal with it and I still wasn't ready, I don't think you ever can be unless you have no other choice but to be.

Now we're all just finding ways to deal with it. Dad told me he's just taking one day at a time which I think is all you really can do in this situation. I told him I'm glad that work and uni are keeping me busy because there's nothing worse than sitting around feeling worried and helpless with nothing to keep your mind occupied.

I've personally received an outpouring of support from my friends and people I'm close to which has been nice, but again, it's still early days and trying to wrap my head around it all is incredibly hard. Watching TV shows, listening to as much music as I can handle and crying in private moments has been the biggest help so far, aside from focusing on my studies which requires a significant amount of mental energy.

Are you ever ready for something like this? Is it possible to ever prepare yourself? So many times people say 'I never expected it to happen to me'. I guess the biggest question is, how do you deal when you don't know how to deal? You either don't, or you find a way.

Saturday, 10 January 2015

It's Okay Not To Be Okay

It's tough growing up in general. It's even tougher growing up without a stable family unit.

My mother was diagnosed with mental illness when she was about my age and has had several breakdowns because of it. For most of my teen years I deeply resented my mother for being ill and not being able to be the kind of mother I wanted and needed. I know she did the best job she was capable of doing, but it doesn't ease the pain or burden of having so many of my own needs go by the wayside.

As a teenager I had to be my own mother, sister and even grandmother at times, more so now that I'm older and wiser. I hated coming home with a full head and heart and just wanting to pour it out to my mother like I'd heard other girls talking about doing at school, only my mother wasn't terribly well versed in over comforting words. Any time I was upset about something, she automatically believed that she'd caused it even if there was no connection at all to my problem and her logic. The other times when she knew it wasn't something she'd done, her best advice was just to pray about it.

Looking back on my teen years I once asked myself why I never prayed for mum to get better, to not have an illness and to be the mother I desperately longed for. The only answer I could come up with was: because it was too hard, too big to ask for.

I couldn't comfortably hang around other kids because they got to be kids, I went home and had to be a carer of sorts to my mother who refused to even acknowledge that she had a serious mental illness making that much harder for the rest of the family. She was able to switch modes as it were, from normal wife and mother, to 'mental patient' and only we saw the difference and had to deal with it the best we could even if that often meant not dealing and just trying to find a way to get through each day. Aside from mum's psychiatrist, we never contacted any organisations that specialized in her particular illnesses, it was too hard to admit there was a problem especially since we spent so much time and effort pretending there wasn't.

Mum has always been the centre of the family, not intentionally, more because we've had to go out of our way to make sure she's happy just to avoid any kind of conflict. I think it's the same for everyone who has someone in their family who isn't well, all the attention and focus goes straight to them and everyone else just finds a way to deal with it.

A close friend of mine who was once one of my high school teachers and has always been a second mother to me, shared her experiences dealing with one of her brothers who has the same condition as my mother although much much worse. She told me of some of the things he'd done and how bad things had gotten and that you just have to find a way to cope because there's little else that can be done. She also told me that as hard as it was for her and her family, it was that much harder having a parent with the illness. This person is meant to raise you and teach you how to be a decent human being, instead you kind of have to raise yourself and the other person because they have the attention and need the childlike care that is taken from you. It's not okay, but you find a way to make it so.

The people who put the effort in whether voluntarily or not to care for the person are hardly ever asked if they're okay, perhaps it's because there's no real way to answer it. When people asked me if I was okay back in school and high school days, I'd just nod and smile not entirely sure how to answer the question. I'd then overcompensate by going out of my way to make sure that everything was okay around me for everyone else if only to remove the focus from how not okay me and my life really was.

One of my present close friends has a sibling who is ill in a different way but requires care and she's told me on many occasions how fed up she is with it. She doesn't want to care for him because she's having to put her life on hold and get treated badly by her family because they're afraid to rock the boat with her sibling. At the same time she doesn't want to just leave him high and dry but isn't sure what else to do so spends as much time as possible either working or with her partner. She finds a way to make it okay when it's anything but.

Not too long ago she texted me explaining the headspace she was in and how she was just sick of dealing with her family and everything so took a day for herself which she desperately needed. I texted her back telling her to not be so hard on herself and that she was doing the best she could with what she was dealing with. She texted me back thanking me and telling me that was exactly what she needed to hear.

It's okay not to be okay especially when you know things aren't okay and you don't know how to make them okay. At least you're not alone, and that's okay.